Understanding Desmoid Tumors
Desmoid tumors—also known as desmoid-type fibromatosis—are rare, noncancerous tumors that arise from connective tissue. Although benign, desmoid tumors can be locally aggressive, meaning they may grow into nearby muscles, nerves, blood vessels, or organs and cause significant symptoms.
At Radiant Cancer Care, we evaluate patients with desmoid tumors to determine whether radiation therapy may be appropriate as part of a personalized treatment strategy, particularly when tumors are inoperable, recurrent, or causing persistent symptoms.
Desmoid tumors can occur in many parts of the body, including the abdomen, pelvis, chest wall, shoulders, arms, legs, and abdominal wall.
Common Symptoms of Desmoid Tumors
Symptoms vary depending on tumor size and location. Some desmoid tumors grow slowly and cause few symptoms, while others may be more aggressive. Common symptoms may include:
- A firm or growing mass
- Pain or discomfort near the tumor site
- Limited range of motion or stiffness
- Pressure on nearby organs or nerves
- Abdominal pain or bowel symptoms (for intra-abdominal tumors)
- Swelling or functional impairment
Any persistent or enlarging mass should be evaluated by a healthcare provider.
Diagnosis: What to Expect
Diagnosing a desmoid tumor typically involves:
- Medical history & physical exam: Review of symptoms and tumor growth behavior
- Imaging tests: MRI or CT scans to assess tumor size, location, and involvement of nearby structures
- Biopsy: Confirms the diagnosis and distinguishes desmoid tumors from other soft tissue tumors
- Specialist consultation: Often includes surgical, medical, and radiation oncology input
Because desmoid tumors behave unpredictably, careful evaluation is essential before selecting a treatment approach.